✨ Real people. Real conversations.

Chronic Disease and Chronic Condition Support Community

Huntington’s disease affects whole families, including the people who do not know whether they carry the gene. ShareWell has free online support groups for people living with serious illness and the people who love them, where you can talk openly.

Live groups available daily.

Join a Free Group How It Works

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Good mornings, goals and gratitude's

Tue, Sep 29 | 6:00AM - 7:30AM UTC

Welcome to Good Mornings, Goals, and Gratitudes. Each morning, we meet with open hearts and tired eyes to greet the day gently, set a daily goal, and choose one small act of care for ourselves. Then, in return, we are grounded, lighter, and reminded that we are not alone. In the GGG, we start our day with positive quotes, journal prompts, self-care activities, daily intentions, and a goal we aim to achieve that day, followed by a moment of gratitude. Join us for a gentle, caring way to start your day.

Attendees

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Upcoming Groups

Member-led

Living With Endometriosis

People managing life with endometriosis

Chronic Illness

Endometriosis

Women's health

1/16

Today 5:00 PM • 60 min

annrny1

New 🎉

Chronic illness support

People looking to connect so not lonely, sad, feel hopeless.

Aging

Chronic Illness

Loneliness

1/20

Today 8:30 PM • 60 min

Breathwork for Nervous System Regulation

Ray_L

Breathwork for Nervous System Regulation

people to learn and practice breathwork techniques

Breathwork

Healing

Inner peace

11/15

Today 9:00 PM • 45 min

Solenne

The Muse & the Midnight Quill

The Alchemy of Witchcraft & Modern Neuroscience

Meditation

Spirituality

Vision building

2 spots left

7/9

Wed, 9/30, 1:00 AM • 90 min

Topic context

Understanding huntington’s disease

Huntington’s disease, or HD, is an inherited disorder that affects movement, behavior, mood and thinking. Because it runs in families, several generations can be affected at once, and relatives live with the question of their own risk.

Why it helps

How peer support helps with huntington’s disease

Peer support can help with Huntington’s disease because few people in the community understand it, which leaves families isolated. A group offers company from people who know what living with uncertainty is like.

Inside the room

What huntington’s disease groups often cover

Deciding whether or not to have genetic testing
Living at risk and the stress of not knowing
Changes in mood and behavior in someone you love
Caring for more than one family member

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

People living with Huntington’s disease
People who are at risk, whether or not they have been tested
Spouses, children and caregivers

Keep exploring

Frequently asked questions

Is there an online support group for Huntington’s disease?

There is no HD group on ShareWell at this time. Families affected by Huntington’s are welcome in the groups on this page, which are for people dealing with serious illness in general, and in the gentle sessions too.

Do I need to have been tested to join?

No. The decision to test is personal, and nobody in a group will push you either way.

Is there room for spouses and adult children?

Yes. Caregivers and family members are welcome with their own account.

Where can I find medical information about Huntington’s disease?

The Huntington’s Disease Society of America (hdsa.org) has family resources and a helpline at 800-345-4372.