Chronic Disease and Chronic Condition Support Community
Live groups available daily.
ALS changes what your body can do while you remain aware of every change. ShareWell has free online support groups for people living with serious illness, where patients, caregivers and loved ones can join from home and take part by speaking, typing or simply being there.
Understanding als
ALS, or amyotrophic lateral sclerosis, formerly known as Lou Gehrig’s disease, affects the nerve cells that control voluntary movement. Over time people lose the ability to control movements such as walking, talking and chewing, while most remain able to think, remember and understand.
How peer support helps with als
Peer support can help with ALS because the whole family is affected, and each person often hides how overwhelmed they feel from the others. A group gives each of you a place of your own to talk.
What als groups often cover
- Being aware of changes as they happen
- Losing speech and finding other ways to communicate
- A partner becoming a caregiver
- Feeling overwhelmed and alone as a family
ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.
Who these groups may help
- People living with ALS, including the newly diagnosed
- Spouses, partners and family caregivers
- People grieving someone they cared for
Related topics
These topics often connect with als and may offer another helpful angle, language, or support space.
Frequently asked questions
Is there an online support group for ALS?
Can I take part if I cannot speak clearly?
Is there support for ALS caregivers?
Where can I find medical information about ALS?
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