Chronic Disease and Chronic Condition Support Community
Bladder cancer can change something as basic as how you use the bathroom, along with your daily and nightly routines. ShareWell has free online support groups where patients, survivors and caregivers facing serious illness share experiences from the comfort of home.
Live groups available daily.
Understanding bladder cancer
Bladder cancer treatment often starts with a procedure to remove tumors from the bladder lining, and some people have all or part of the bladder removed. After that, urine leaves the body a new way, through a urostomy pouch or a new bladder made from intestine, and regular bladder exams become part of life.
How peer support helps with bladder cancer
Peer support can help with bladder cancer because a urostomy, leaks and changes in intimacy are subjects most people cannot raise with friends. A peer-led group is a safe space to ask the questions you would not ask anywhere else.
What bladder cancer groups often cover
- Getting used to a urostomy pouch or a neobladder
- Worry about leaks when you are out or with a partner
- Nerves before each bladder exam
- Feeling at ease in your body again
ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.
Who these groups may help
- People with bladder cancer, from newly diagnosed to long-term survivors
- People who have had their bladder removed
- Caregivers and partners
Related topics
These topics often connect with bladder cancer and may offer another helpful angle, language, or support space.
Frequently asked questions
Is there an online support group for bladder cancer?
Can I talk about living with a urostomy?
Is there support for caregivers of someone with bladder cancer?
Where can I find medical information about bladder cancer?
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