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Epilepsy Support Groups Online

For some people, epilepsy takes away things others take for granted, such as driving. ShareWell has free online support groups for people living with long-term illness, which you can reach without needing a ride.

Live groups available daily.

Upcoming Groups

Parents of Children with Chronic Illness

Member-led

Parents of Children with Chronic Illness

parents of kids with chronic illness or disabilities

Chronic Illness
Parenthood
1/16
Today 5:00 PM • 60 min
Overcome what stopping yourself
anthonyluper784

anthonyluper784

New 🎉
Overcome what stopping yourself

regaining a better mind after damaging to your brain

Bipolar disorder
Disabilities
Mindfulness
2/13
Today 7:00 PM • 60 min
Support for life with chronic illness & pain
bonniemcc

bonniemcc

Support for life with chronic illness & pain

People who have chronic illness and/or pain

Chronic Illness
Feeling stuck
Mobility challenges
3/16
Today 7:00 PM • 60 min
Relaxing Breathwork
CharIotte

CharIotte

Relaxing Breathwork

nervous system co-regulation through breath control

Breathwork
Mindfulness
Stress management
11/16
Today 9:00 PM • 45 min
Topic context

Understanding epilepsy

Epilepsy causes seizures that can happen without warning. Beyond the seizures themselves, many people live with limits on driving, side effects from medication, concerns about safety and the reactions of others.

Why it helps

How peer support helps with epilepsy

Peer support can help with epilepsy because fear and stigma lead many people to hide their condition. Talking with others who understand can make it easier to ask for what you need.

Inside the room

What epilepsy groups often cover

  • Not being able to drive
  • Fear of a seizure in public
  • Deciding who to tell at work or school
  • Tiredness and memory problems

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

  • People living with epilepsy or a seizure disorder
  • People who have lost independence because of seizures
  • Parents of a child with epilepsy
Keep exploring

Related topics

These topics often connect with epilepsy and may offer another helpful angle, language, or support space.

Frequently asked questions

Is there a group for epilepsy?

There is no epilepsy group for the time being. We show groups that welcome people with all sorts of ongoing conditions, and gentle sessions like mindfulness that anyone can join.

I cannot drive. How do I attend?

Every group is held by video, so you attend from wherever you are.

Should I tell the group about my seizures?

That is up to you. Hosts and members are peers and cannot send help to you, so if you are concerned about having a seizure on a call, have someone nearby who knows what to do.

Where can I find medical information about epilepsy?

The Centers for Disease Control and Prevention (cdc.gov/epilepsy) has guides to living with epilepsy, and the Epilepsy Foundation (epilepsy.com) is the main patient organization.

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