Chronic Disease and Chronic Condition Support Community
For some people, epilepsy takes away things others take for granted, such as driving. ShareWell has free online support groups for people living with long-term illness, which you can reach without needing a ride.
Live groups available daily.
Understanding epilepsy
Epilepsy causes seizures that can happen without warning. Beyond the seizures themselves, many people live with limits on driving, side effects from medication, concerns about safety and the reactions of others.
How peer support helps with epilepsy
Peer support can help with epilepsy because fear and stigma lead many people to hide their condition. Talking with others who understand can make it easier to ask for what you need.
What epilepsy groups often cover
- Not being able to drive
- Fear of a seizure in public
- Deciding who to tell at work or school
- Tiredness and memory problems
ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.
Who these groups may help
- People living with epilepsy or a seizure disorder
- People who have lost independence because of seizures
- Parents of a child with epilepsy
Related topics
These topics often connect with epilepsy and may offer another helpful angle, language, or support space.
Frequently asked questions
Is there a group for epilepsy?
I cannot drive. How do I attend?
Should I tell the group about my seizures?
Where can I find medical information about epilepsy?
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