Chronic Disease and Chronic Condition Support Community
Live groups available daily.
Interstitial cystitis can put a bathroom at the center of every plan, including sleep. ShareWell has free online support groups for people living with long-term illness and pain, where you can connect, share experiences and step away whenever you need to.
Understanding interstitial cystitis
Interstitial cystitis, also called IC or bladder pain syndrome, is a long-lasting condition that brings pain or pressure in the bladder and pelvic area. It means needing to urinate often and urgently, including through the night, and symptoms can flare after stress, certain foods, long periods of sitting, travel or sex.
How peer support helps with interstitial cystitis
Peer support can help with interstitial cystitis because bladder and pelvic pain are hard to bring up, even with close friends. A group is a safe place to talk about the parts of IC that stay private everywhere else.
What interstitial cystitis groups often cover
- Flares set off by ordinary things like travel or sitting
- Broken sleep from getting up through the night
- Avoiding intimacy because of pain
- Living with IC alongside other pain conditions
ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.
Who these groups may help
- Women and men living with IC or bladder pain syndrome
- People who plan every outing around a bathroom
- Partners, family members and friends
Related topics
These topics often connect with interstitial cystitis and may offer another helpful angle, language, or support space.
Frequently asked questions
Is there an online support group for interstitial cystitis?
Can I leave the session to use the bathroom?
Can I talk about intimacy and IC?
Where can I find medical information about interstitial cystitis?
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