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Chronic Disease and Chronic Condition Support Community

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Living With Endometriosis

People managing life with endometriosis

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Chronic illness support
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annrny1

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People looking to connect so not lonely, sad, feel hopeless.

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Breathwork for Nervous System Regulation
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Ray_L

Breathwork for Nervous System Regulation

people to learn and practice breathwork techniques

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The Muse & the Midnight Quill
Solenne

Solenne

The Muse & the Midnight Quill

The Alchemy of Witchcraft & Modern Neuroscience

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7/9
Wed, 9/30, 1:00 AM • 90 min

Interstitial cystitis can put a bathroom at the center of every plan, including sleep. ShareWell has free online support groups for people living with long-term illness and pain, where you can connect, share experiences and step away whenever you need to.

Topic context

Understanding interstitial cystitis

Interstitial cystitis, also called IC or bladder pain syndrome, is a long-lasting condition that brings pain or pressure in the bladder and pelvic area. It means needing to urinate often and urgently, including through the night, and symptoms can flare after stress, certain foods, long periods of sitting, travel or sex.

Why it helps

How peer support helps with interstitial cystitis

Peer support can help with interstitial cystitis because bladder and pelvic pain are hard to bring up, even with close friends. A group is a safe place to talk about the parts of IC that stay private everywhere else.

Inside the room

What interstitial cystitis groups often cover

  • Flares set off by ordinary things like travel or sitting
  • Broken sleep from getting up through the night
  • Avoiding intimacy because of pain
  • Living with IC alongside other pain conditions

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

  • Women and men living with IC or bladder pain syndrome
  • People who plan every outing around a bathroom
  • Partners, family members and friends
Keep exploring

Related topics

These topics often connect with interstitial cystitis and may offer another helpful angle, language, or support space.

Frequently asked questions

Is there an online support group for interstitial cystitis?

ShareWell does not have an IC group of its own. The groups listed on this page are for people with long-term illness and pain of any kind, together with gentle sessions, and people with IC are welcome.

Can I leave the session to use the bathroom?

Yes, as often as you need. You can step out and rejoin without explaining.

Can I talk about intimacy and IC?

Yes, if you want to. You decide how much to share.

Where can I find medical information about interstitial cystitis?

The Interstitial Cystitis Association (ichelp.org) serves people with IC and bladder pain syndrome.

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