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Lupus Support Groups Online

Lupus is often invisible, so people hear that they do not look sick on the days they feel their worst. ShareWell has free online support groups for people living with long-term illness, where members know what an invisible illness is like.

Live groups available daily.

Upcoming Groups

Parents of Children with Chronic Illness

Member-led

Parents of Children with Chronic Illness

parents of kids with chronic illness or disabilities

Chronic Illness
Parenthood
1/16
Today 5:00 PM • 60 min
Overcome what stopping yourself
anthonyluper784

anthonyluper784

New 🎉
Overcome what stopping yourself

regaining a better mind after damaging to your brain

Bipolar disorder
Disabilities
Mindfulness
2/13
Today 7:00 PM • 60 min
Support for life with chronic illness & pain
bonniemcc

bonniemcc

Support for life with chronic illness & pain

People who have chronic illness and/or pain

Chronic Illness
Feeling stuck
Mobility challenges
3/16
Today 7:00 PM • 60 min
Relaxing Breathwork
CharIotte

CharIotte

Relaxing Breathwork

nervous system co-regulation through breath control

Breathwork
Mindfulness
Stress management
11/16
Today 9:00 PM • 45 min
Topic context

Understanding lupus

Lupus is an autoimmune disease in which the immune system attacks healthy tissue. It can affect joints, skin and organs, it comes in flares, and because symptoms such as fatigue and pain cannot be seen, many people feel their illness is doubted.

Why it helps

How peer support helps with lupus

Peer support can help with lupus because being doubted is exhausting. In a group you can save your energy for talking about how you are really doing.

Inside the room

What lupus groups often cover

  • Hearing that you do not look sick
  • Flares that upset every plan
  • Rationing energy through the day
  • Medication side effects and body changes

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

  • People diagnosed with lupus
  • People waiting for a clear diagnosis
  • Anyone living with an invisible illness
Keep exploring

Related topics

These topics often connect with lupus and may offer another helpful angle, language, or support space.

Frequently asked questions

Is there a lupus group?

No lupus group exists on ShareWell today. The groups shown are for people with invisible and long-term illnesses of many kinds, and the gentle sessions next to them are open to everyone.

I do not have a firm diagnosis yet. Can I join?

Yes. Lupus can be hard to diagnose, and a diagnosis is not needed to join.

What if a flare keeps me from attending?

Nothing is lost. You can come back whenever you are able.

Where can I find medical information about lupus?

The Lupus Foundation of America (lupus.org) has patient information and health educators who answer questions.

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