Chronic Disease and Chronic Condition Support Community
Live groups available daily.
Lupus is often invisible, so people hear that they do not look sick on the days they feel their worst. ShareWell has free online support groups for people living with long-term illness, where members know what an invisible illness is like.
Understanding lupus
Lupus is an autoimmune disease in which the immune system attacks healthy tissue. It can affect joints, skin and organs, it comes in flares, and because symptoms such as fatigue and pain cannot be seen, many people feel their illness is doubted.
How peer support helps with lupus
Peer support can help with lupus because being doubted is exhausting. In a group you can save your energy for talking about how you are really doing.
What lupus groups often cover
- Hearing that you do not look sick
- Flares that upset every plan
- Rationing energy through the day
- Medication side effects and body changes
ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.
Who these groups may help
- People diagnosed with lupus
- People waiting for a clear diagnosis
- Anyone living with an invisible illness
Related topics
These topics often connect with lupus and may offer another helpful angle, language, or support space.
Frequently asked questions
Is there a lupus group?
I do not have a firm diagnosis yet. Can I join?
What if a flare keeps me from attending?
Where can I find medical information about lupus?
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