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Chronic Disease and Chronic Condition Support Community

Scleroderma is rare enough that many people never meet another person who has it. ShareWell has free online support groups for people living with long-term illness, where you can find company for symptoms that are visible as well as ones nobody sees.

Live groups available daily.

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Good mornings, goals and gratitude's

Tue, Sep 29 | 6:00AM - 7:30AM UTC

Welcome to Good Mornings, Goals, and Gratitudes. Each morning, we meet with open hearts and tired eyes to greet the day gently, set a daily goal, and choose one small act of care for ourselves. Then, in return, we are grounded, lighter, and reminded that we are not alone. In the GGG, we start our day with positive quotes, journal prompts, self-care activities, daily intentions, and a goal we aim to achieve that day, followed by a moment of gratitude. Join us for a gentle, caring way to start your day.

Attendees

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Upcoming Groups

Member-led

Living With Endometriosis

People managing life with endometriosis

Chronic Illness

Endometriosis

Women's health

1/16

Today 5:00 PM • 60 min

annrny1

New 🎉

Chronic illness support

People looking to connect so not lonely, sad, feel hopeless.

Aging

Chronic Illness

Loneliness

1/20

Today 8:30 PM • 60 min

Breathwork for Nervous System Regulation

Ray_L

Breathwork for Nervous System Regulation

people to learn and practice breathwork techniques

Breathwork

Healing

Inner peace

11/15

Today 9:00 PM • 45 min

Solenne

The Muse & the Midnight Quill

The Alchemy of Witchcraft & Modern Neuroscience

Meditation

Spirituality

Vision building

2 spots left

7/9

Wed, 9/30, 1:00 AM • 90 min

Topic context

Understanding scleroderma

Scleroderma is an autoimmune disease that causes areas of tight, hard skin. The localized form affects the skin, while systemic scleroderma, also called systemic sclerosis, can affect blood vessels and internal organs, and fingers and toes can react painfully to cold or stress.

Why it helps

How peer support helps with scleroderma

Peer support can help with scleroderma because a rare disease brings a feeling of isolation. Being with people who also live with long-term illness makes it less lonely.

Inside the room

What scleroderma groups often cover

Feeling alone with a rare disease
Changes to the skin of the face and hands
Painful hands in the cold
Taking in a complex new diagnosis

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

People with localized or systemic scleroderma
People taking in a new scleroderma diagnosis
Family and friends who give support

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Frequently asked questions

Is there an online support group for scleroderma?

ShareWell has not set up a scleroderma group. The groups listed here welcome people with chronic illness of every type, and gentle sessions are shown alongside them.

Will anyone understand a rare disease?

Members live with many different conditions, and the experience of long-term illness is something they share.

Can someone close to me attend as well?

Yes. Loved ones can take part with a free account of their own.

Where can I find medical information about scleroderma?

The National Scleroderma Foundation (scleroderma.org) can be reached toll free at 800-722-4673.