Chronic Disease and Chronic Condition Support Community
Sjogren’s is often described as dry eyes and dry mouth, which leaves out the fatigue that can shape a whole day. ShareWell has free online support groups for people living with long-term illness, where you can talk with others who know it affects the entire body.
Live groups available daily.
Understanding sjogren’s syndrome
Sjogren’s syndrome, which the Sjogren’s Foundation now calls Sjogren’s disease, is a long-lasting autoimmune disease in which the immune system attacks the glands that make moisture. It causes dry eyes and dry mouth and can affect joints, nerves and other parts of the body, and many people describe heavy fatigue and trouble concentrating.
How peer support helps with sjogren’s syndrome
Peer support can help with Sjogren’s because many people spend a long time uncertain before they get a name for what they have, and feel alone with it afterward. A group brings you into contact with others on the same path.
What sjogren’s syndrome groups often cover
- Fatigue that gets in the way of daily life
- Trouble thinking clearly or remembering
- Dry mouth that makes speaking and eating harder
- Strain on work, relationships and social life
ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.
Who these groups may help
- Women and men living with Sjogren’s
- People who finally have a name for their symptoms
- Anyone who feels alone with the condition
Related topics
These topics often connect with sjogren’s syndrome and may offer another helpful angle, language, or support space.
Frequently asked questions
Is there an online support group for Sjogren’s?
Talking dries my mouth. Can I still take part?
Is Sjogren’s disease the same as Sjogren’s syndrome?
Where can I find medical information about Sjogren’s?
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