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Chronic Disease and Chronic Condition Support Community

Sjogren’s is often described as dry eyes and dry mouth, which leaves out the fatigue that can shape a whole day. ShareWell has free online support groups for people living with long-term illness, where you can talk with others who know it affects the entire body.

Live groups available daily.

Upcoming Groups

Living With Endometriosis

Member-led

Living With Endometriosis

People managing life with endometriosis

Chronic Illness
Endometriosis
Women's health
1/16
Today 5:00 PM • 60 min
Chronic illness support
annrny1

annrny1

New 🎉
Chronic illness support

People looking to connect so not lonely, sad, feel hopeless.

Aging
Chronic Illness
Loneliness
1/20
Today 8:30 PM • 60 min
Breathwork for Nervous System Regulation
Ray_L

Ray_L

Breathwork for Nervous System Regulation

people to learn and practice breathwork techniques

Breathwork
Healing
Inner peace
11/15
Today 9:00 PM • 45 min
The Muse & the Midnight Quill
Solenne

Solenne

The Muse & the Midnight Quill

The Alchemy of Witchcraft & Modern Neuroscience

Meditation
Spirituality
Vision building

2 spots left

7/9
Wed, 9/30, 1:00 AM • 90 min
Topic context

Understanding sjogren’s syndrome

Sjogren’s syndrome, which the Sjogren’s Foundation now calls Sjogren’s disease, is a long-lasting autoimmune disease in which the immune system attacks the glands that make moisture. It causes dry eyes and dry mouth and can affect joints, nerves and other parts of the body, and many people describe heavy fatigue and trouble concentrating.

Why it helps

How peer support helps with sjogren’s syndrome

Peer support can help with Sjogren’s because many people spend a long time uncertain before they get a name for what they have, and feel alone with it afterward. A group brings you into contact with others on the same path.

Inside the room

What sjogren’s syndrome groups often cover

  • Fatigue that gets in the way of daily life
  • Trouble thinking clearly or remembering
  • Dry mouth that makes speaking and eating harder
  • Strain on work, relationships and social life

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

  • Women and men living with Sjogren’s
  • People who finally have a name for their symptoms
  • Anyone who feels alone with the condition
Keep exploring

Related topics

These topics often connect with sjogren’s syndrome and may offer another helpful angle, language, or support space.

Frequently asked questions

Is there an online support group for Sjogren’s?

A Sjogren’s group is not offered on ShareWell for now. People with Sjogren’s can join the groups on this page, which serve anyone with a long-term illness, or one of the calm sessions.

Talking dries my mouth. Can I still take part?

Yes. Keep water beside you, take breaks, and use the chat when you prefer.

Is Sjogren’s disease the same as Sjogren’s syndrome?

Yes. They are two names for the same condition, and the Sjogren’s Foundation now uses Sjogren’s disease.

Where can I find medical information about Sjogren’s?

The Sjogren’s Foundation (sjogrens.org) has information for patients and families.

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