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Lyme Disease Support Groups Online

Ongoing symptoms after Lyme disease can affect work, sleep and thinking for a long time, and there are few clear answers. ShareWell has free online support groups for people living with long-term illness, where you can talk about daily life with people who understand.

Live groups available daily.

Upcoming Groups

Parents of Children with Chronic Illness

Member-led

Parents of Children with Chronic Illness

parents of kids with chronic illness or disabilities

Chronic Illness
Parenthood
1/16
Today 5:00 PM • 60 min
Overcome what stopping yourself
anthonyluper784

anthonyluper784

New 🎉
Overcome what stopping yourself

regaining a better mind after damaging to your brain

Bipolar disorder
Disabilities
Mindfulness
2/13
Today 7:00 PM • 60 min
Support for life with chronic illness & pain
bonniemcc

bonniemcc

Support for life with chronic illness & pain

People who have chronic illness and/or pain

Chronic Illness
Feeling stuck
Mobility challenges
3/16
Today 7:00 PM • 60 min
Relaxing Breathwork
CharIotte

CharIotte

Relaxing Breathwork

nervous system co-regulation through breath control

Breathwork
Mindfulness
Stress management
11/16
Today 9:00 PM • 45 min
Topic context

Understanding lyme disease

After treatment for Lyme disease, some people have prolonged symptoms such as fatigue, body aches and difficulty thinking. The CDC calls this Post-Treatment Lyme Disease Syndrome and says the cause is not currently known, while many patients call it chronic Lyme.

Why it helps

How peer support helps with lyme disease

Peer support can help with ongoing symptoms after Lyme disease because living with an illness that has no clear explanation is lonely. A group offers company and understanding, and it does not offer medical advice.

Inside the room

What lyme disease groups often cover

  • Fatigue and pain that continue after treatment
  • Trouble thinking and remembering
  • Being unable to work as before
  • Living without clear answers

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

  • People with ongoing symptoms after Lyme disease
  • People with other tick-borne illnesses
  • Caregivers and family members
Keep exploring

Related topics

These topics often connect with lyme disease and may offer another helpful angle, language, or support space.

Frequently asked questions

Is there an online support group for Lyme disease?

There is no Lyme group on ShareWell. People with ongoing symptoms after Lyme are welcome in the groups on this page, which are for anyone with a long-term illness, and in the calm sessions.

Will the group tell me what treatment to try?

No. Groups are for support and do not give treatment advice, so please rely on your doctor for medical decisions.

Do I need a positive test to join?

No. You do not have to show any test result or diagnosis.

Where can I find medical information about Lyme disease?

The Centers for Disease Control and Prevention (cdc.gov/lyme) has current information on Lyme disease and on symptoms that continue after treatment.

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