Chronic Disease and Chronic Condition Support Community
Live groups available daily.
Ongoing symptoms after Lyme disease can affect work, sleep and thinking for a long time, and there are few clear answers. ShareWell has free online support groups for people living with long-term illness, where you can talk about daily life with people who understand.
Understanding lyme disease
After treatment for Lyme disease, some people have prolonged symptoms such as fatigue, body aches and difficulty thinking. The CDC calls this Post-Treatment Lyme Disease Syndrome and says the cause is not currently known, while many patients call it chronic Lyme.
How peer support helps with lyme disease
Peer support can help with ongoing symptoms after Lyme disease because living with an illness that has no clear explanation is lonely. A group offers company and understanding, and it does not offer medical advice.
What lyme disease groups often cover
- Fatigue and pain that continue after treatment
- Trouble thinking and remembering
- Being unable to work as before
- Living without clear answers
ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.
Who these groups may help
- People with ongoing symptoms after Lyme disease
- People with other tick-borne illnesses
- Caregivers and family members
Related topics
These topics often connect with lyme disease and may offer another helpful angle, language, or support space.
Frequently asked questions
Is there an online support group for Lyme disease?
Will the group tell me what treatment to try?
Do I need a positive test to join?
Where can I find medical information about Lyme disease?
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