Chronic Disease and Chronic Condition Support Community
Live groups available daily.
POTS can make standing in a line feel impossible, and many people are told it is anxiety long before anyone tests for it. ShareWell has free online support groups for people living with long-term illness, which you can attend sitting or lying down.
Understanding pots
POTS, or postural orthostatic tachycardia syndrome, causes a racing heart, dizziness and sometimes fainting on standing, along with fatigue and brain fog. It most often affects women from their teens through middle age, though anyone can have it, and it is commonly mistaken for anxiety before it is diagnosed.
How peer support helps with pots
Peer support can help with POTS because being misdiagnosed and doubted is a common part of the story. Talking with people who have been through the same helps rebuild trust in your own experience.
What pots groups often cover
- Being told your symptoms are anxiety
- Dizziness and fear of fainting in public
- School or work with unpredictable energy
- Explaining a condition few people know
ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.
Who these groups may help
- People living with POTS or another form of dysautonomia
- Students and adults managing school, work or parenting with POTS
- Anyone still looking for a diagnosis
Related topics
These topics often connect with pots and may offer another helpful angle, language, or support space.
Frequently asked questions
Are there POTS groups?
Can I lie down during a group?
Is this page for other kinds of dysautonomia?
Where can I find medical information about POTS?
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