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Chronic Disease and Chronic Condition Support Community

People with sickle cell disease often have to convince others that their pain is real while they are in the middle of it. ShareWell has free online support groups for people living with long-term illness and pain, where members know what it is like to be doubted.

Live groups available daily.

Join a Free Group How It Works

Featured Today

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NEW

Good mornings, goals and gratitude's

Tue, Sep 29 | 6:00AM - 7:30AM UTC

Welcome to Good Mornings, Goals, and Gratitudes. Each morning, we meet with open hearts and tired eyes to greet the day gently, set a daily goal, and choose one small act of care for ourselves. Then, in return, we are grounded, lighter, and reminded that we are not alone. In the GGG, we start our day with positive quotes, journal prompts, self-care activities, daily intentions, and a goal we aim to achieve that day, followed by a moment of gratitude. Join us for a gentle, caring way to start your day.

Attendees

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Upcoming Groups

Member-led

Living With Endometriosis

People managing life with endometriosis

Chronic Illness

Endometriosis

Women's health

1/16

Today 5:00 PM • 60 min

annrny1

New 🎉

Chronic illness support

People looking to connect so not lonely, sad, feel hopeless.

Aging

Chronic Illness

Loneliness

1/20

Today 8:30 PM • 60 min

Breathwork for Nervous System Regulation

Ray_L

Breathwork for Nervous System Regulation

people to learn and practice breathwork techniques

Breathwork

Healing

Inner peace

11/15

Today 9:00 PM • 45 min

Solenne

The Muse & the Midnight Quill

The Alchemy of Witchcraft & Modern Neuroscience

Meditation

Spirituality

Vision building

2 spots left

7/9

Wed, 9/30, 1:00 AM • 90 min

Topic context

Understanding sickle cell disease

Sickle cell disease is an inherited red blood cell condition that causes episodes of severe pain, known as crises, and for many people pain that is there every day. Many people say they have had to fight to have their pain taken seriously, including in emergency rooms.

Why it helps

How peer support helps with sickle cell disease

Peer support can help with sickle cell disease because being disbelieved on top of being in pain is deeply wearing. A group offers a place to be heard without having to argue your case.

Inside the room

What sickle cell disease groups often cover

Pain crises and recovering afterward
Not being believed in the emergency room
School, work and plans interrupted by hospital stays
Moving from child to adult care

ShareWell groups are peer support and do not give medical advice, so please keep working with your care team on anything about diagnosis or treatment. If you are in crisis, call or text 988 to reach the Suicide & Crisis Lifeline.

Good fit for

Who these groups may help

People living with sickle cell disease
Young adults moving into adult care
Parents and family members

Keep exploring

Frequently asked questions

Is there a sickle cell group?

We have not opened a sickle cell group. You are invited to the chronic pain and chronic illness groups on this page, whose members have many different diagnoses, and to the gentle sessions too.

Can I attend while I am admitted for a crisis?

Yes, if you have a device, an internet connection and feel well enough.

Can parents join?

Yes. Parents can join with their own account, and caregiving groups are available.

Where can I find medical information about sickle cell disease?

The National Heart, Lung, and Blood Institute (nhlbi.nih.gov) has a guide to living with sickle cell disease, and the Sickle Cell Disease Association of America is the national patient organization.